There are so many things that you need to learn when you are newly diagnosed with ITP, MCTD, Lupus, or any other chronic illness. As you are learning and going through it...your support system needs to be learning as well. You cannot expect for everyone to know how to handle what you are going through right off the bat. Just as you had to learn...so do they. So I have found a way to make the explanation process so much easier...The Spoon Theory by Christine Miserandino. This is not only for Lupus patients. It can be applied to any chronic illness in which you have to take it easy and think ahead about how you are going to manage your time and energy throughout the day.
Here is the link: http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/
When I first read the Spoon Theory...it helped me (the person with the many chronic illnesses) to understand what I was going through and how to better survive throughout the day!
You will NEVER stop learning about your ILLNESS and you will NEVER stop being surprised about what you find out.
The sooner you realize that having an AMAZING support system will prolong YOUR life. This is YOUR life and YOUR support system which means YOU are not alone!
WHEN YOU REPLACE "I" WITH "WE" EVEN "ILLNESS" BECOMES "WELLNESS"
No comments:
Post a Comment