Today we received the results from the new treatment. The new treatment is call IVIG, Intravenous Immuna Globulin. This is a Gamma Globulin treatment that they use to attempt to fool my immune system. They came in and drew blood this morning at 4:00 am in order to check my platelet count because the IVIG was administered yesterday. My platelets dropped from 4,000 yesterday morning to 3,000 this morning. I am okay with this because that was only the first attempt of this treatment and my immune system may just be hard to fool.
I have to stay positive especially for my mother. Seeing her breakdown just tears me to pieces. I have to be strong for her. She has started to figure out that I have been holding back my pain and have not been expressing what I am truly feeling. It gets hard to do so because I am so use to taking care of the people around me.
It seems like this is going to be a long journey and something that I will be dealing with for the rest of my life. Everyone around me keeps saying that I am not sick, or that everything will be alright, or I don't have what they say I have, but I have no choice but to be realistic. That is the only way I will make it through this. If things change down the line then I will address that at that time.
I have a great support system and I am thankful for that. There are some people that I wish were there for me more than they are, but you can't force people to step up. I realize now that it is time for me to worry about me and focus on me. This is my new goal! I will succeed.
You're so strong. I love you. You may be the baby, but your strength and determination are an inspiration to us all. I'm so happy that you're sharing your story. Be brave and hold God's hand. You are a blessing to my life and hopefully your story will bless others.
ReplyDeleteBoy talk about having "hands on expreience". You will have such a testimony to tell when this is over--and it will be over soon. GOD has a way of setting our priorities straight for us sometimes. Hang in there and stay positive. I know I hate to see your Mother cry too.
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