So...obviously the good news I spoke of in my previous post turned into bad news because I am still in the hospital. That afternoon (December 2, 2012) after the third round of IVIG things went horribly wrong! I received a bad batch. Everything was going really well at first...then my back started hurting...my chest started hurting...head POUNDING! In and out of consciousness! Fainting! Couldn't stand up...couldn't sit down...no one could touch me....kidneys failed.
They moved me up to ICU.
The first day in ICU I was on dialysis for a full 24 hours. I have been through hemodialysis (3 hours) 3 times so far. I have also had 3.5 bags of blood transfusion. All of this is really weighing down on me mentally and emotionally.
They say that my kidneys are waking up, but there is still no telling when I will be out of here. I cry everyday and the days get more and more depressing. This is not my room...this is not my bed...this is not my life...this is not me!
One morning after everything had finally settled down I wanted to get up to move and that is when we discovered...I could not walk. Things seemed to me...at the time...that things would only get worse from here. I began my downward spiral into a state of depression that no one would probably be able to get me out of.
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